Quote:
Originally Posted by gareth847
I am a 62 yr old white male with a spinal fluid leak in the right L3 region (underneath on the ventral surface of the dura and underneath the nerve root). This CSF leak resulted during spinal surgery 10-09-06 conducted in Amarillo, TX. There have been three unsuccessful attempts to repair the leak. I have typical CSF leak symptoms, headaches, exaggerated hearing, nausea, loss of energy and weight loss (normally 150, now about 135). I have undergone 60 hyperbaric treatments at Duke Medical Center (negative results for healing the tear). I am stable but would very much appreciate any help getting this repaired soon. Medical history (highlights) includes, substantial thorax radiation (13,000 rads over 8 weeks in 1972) for treatment for testicular cancer (teritoma carcinoma rt testicle, removed), radical lymph node dissection (1972), gastric bypass (1974), 7 previous surgeries for flatback syndrome, spine implants, implant failures, lumbar spinal stenosis with radiculopathy. I know,......I'm lucky to be alive. Bottom line is that I am looking for a clinic/hospital/surgeon with successful experience in repairing CSF leaks. ANY help is appreciated, on or off line (gareth847@aol.com) Thanks
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Hello, My sister is undergoing a surgical procedure today at Cedars Sinai in LA to repair a tear in the dura. This tear happened during her surgery last week for stenosis and disc problems. Apparently one of the tools the surgeon uses can nick the membrane. I will let you know of the success (hopefully!) or otherwise of this procedure. The surgeon who performed the original surgery is Dr. Chu (Cedars) and apparently one of his associates is a specialist at doing these repairs. I am told they are very good at this. We are all holding our collective breaths for a good outcome. As I said, I'll let you know. Good luck to you.