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Member
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Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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Member
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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Hi there!
Welcome to the Forum!
Sorry that you had to experience a seizure, but I also have
epilepsy, was born with it. However, I must put the emphasis
on this. Anti-epileptic drugs do not cure "seizures", they only
help prevent it, moreover, sometimes people are able to gain
full seizure control with medication(s) and some people are only
able to gain some control with medication(s).
Since you had mentioned you had started in December 2008;
it does take time for the body to become adjusted (everyone
is differing - due to our chemistry and hematology; for no two
of us are alike, for we are all like snowflakes - not one of us are
the same!) - while some adapt right away others takes longer
to progress. Moreover I also want to add, working with anti-
epileptic drug(s) is a "trial and error" basis with titrations up
and down.
Like Darlene had implied, so will I; for I have been on tirades
of medication(s) - from just 1 to as many as 5; and just recently,
had to go off of Lamictal after it was being so successful all due
to the serious allergic reaction to it which was unfortunate. Right
now, my Doctor has to consider another review of "What's next"?
(On my end, my meds are working but I have nothing to fall back
to and we need that - therefore the need to have another tirade
of medications so to be on the safe side).
Patience and open-communication with your Doctor is the primary
key; so keeping a log/notebook/diary/etc - is important. You will
be surprised that just that one time event is nothing compared to
what "used to be like" before, if you truly stop and think about it!
It is TRUE that finding the right levels (or dosage) can be trying at
times - but as implied in the above paragraph, keep that line of
communication open.
In addition ---> It is generally a good idea whether you are healthy
or bogged down with medical conditions; to go over with your
Physician in regards to exercise(s) - to physical fitness. I am a former
semi-pro / AAU cyclist - and very much involved with sports; rightfully
so, the only way to work with this is with your Physician and slow and
easy is the way to go. Never ever push yourself over the fence, nor
force yourself to do it when you do not feel like it; forget about that
"No pain, no gain" gimmick.
Your Physician most likely would start you on a simple, easy to do at
home, exercise. The most important thing is - discipline, and developing
it to be a habit. Another option to get yourself involved if you are
residing in a metro or a well developed area -- near a Hospital or
University; you might be able to enroll through the program available
through there if it is available.
There is such thing as pushing oneself into seizure mode; I have done
that by overdoing it ... no one is to blame but myself! And I assure you,
you do not want to experience that! Therefore the reason for my posting
of the emphasis on DISCIPLINE ... especially on self-discipline so one
may gain self-control as not to overdo it. And that, I confess, is a dire
fault of mine; a weakness which I continually strive to overcome.
(We all have strengths and weaknesses, so there is no shame in
confessing our weaknesses, and that happens to be one of my
weaknesses - and thus, pushes my seizure threshold up, but not
necessarily pushes me into the seizure mode all the time; it merely
means "I" put my own self into a high risk for one.)
__________________
Sharon
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" Vujà Dé - The feeling you've
never been in here before!"
Daily Feedbag of Zonegran, Clonazepam, and Folic Acid
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