Quote:
Originally Posted by michael178
Some time ago, after I was Dx'd, and I knew where my life was headed, I'd state that I was happily on my way to becoming the village idiot. But now that I am almost to that point, I want to tell you, that it is absolutely not a good experience. My memory now is only a faded memory, and my life has turned into a trainwreck. My diabetes doctor wants me to test my blood a mealtimes fourtimes a day. In a week's time, I remembered to test once a day, and I really tried to do what he wanted. I got sent to the diabetes training program and met several great nurses who explained what I should be doing: test once a day, and write down what I eat at each meal. I finally said. Wait..I cannot do that. I am absolutely incapable of doing what you want. I cannot remember to take my medications every day, cannot remember what I ate after i FINISH A MEAL, i HAVE A HARD TIME FINDING MY WAY home....there is no way I will remember anything more than my name. i AM THE VILLAGE IDIOT. and it is not fun, my life is an absolute trainwreck, in shambles. The problem is that intellectually I still function, and I know how bad I screw things up.
So, if anyone is as flippant as I was in thinking that dementia is going to be all right, forget it please, it is no fun. I still have my driver's license, but really I should not be driving and I won't renew it. But, damnit, I need it, I need to get groceries and run occasionally to the hardware store. and I need to get to the Y so that I can get some exercise. I need not to become an absolute burden to my family or to society, and I cannot figure how to avoid being that burden.
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Dear Michael;
I have many of the same issues that you have. It is very different when the person who is deteriating is yourself...verses the concerned caregiver or family member. Contact w/ a fellow sufferer is a validation of our traumatic circumstance.
Like you I try to cope w/ fear & anxiety re/ the future by planning on an 'early escape' (before it's too late & beyond my control to "get out"). This is a perfectly natural reaction to quality of life issues.
Whether the ill person will have the courage to act on the plan in the future is almost beside the point. For me right now, just being able to exert a little meaningless control is giving me a bit of relief.
I am not dx'd as my Dr's are dragging their feet re/ Neuro refferal, however I know what I know...I am (and have been for a quite a while) suffering very significant cognitive decline. Driving, directions, time management...it's all a nightmare!
Michael, I would sincerely love to hear more about you and what you are going through. My Memory is shot so sure hope I remember this site and that I posted this. Perhaps the Mod could email me when/if there is a reply???
I would be so appreciative of that kindness.
All the best to you Michael.
Sincerely; 4ever