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Originally Posted by Iffynah
Sorry haven't been around in a while. My computer crashed. So have to walk to the library and let me tell you its a long walk. Just a lil update. Have had the 6 nerve blocks. The PM doctor wanted 3 more to see how they work. If they don't go as well as he is expecting then I have to see a neurologist to make sure my ulnar nerve isn't trapped and if not then I go for a Spinal Cord Stimulator. I'm hoping the last few nerve blocks do me good. I really don't want the SCS. So that is about all that is going on right now. See you around sometime.
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Hi - There are still options other than the SCS. Lidocaine and Ketamine are hard to get, but they are out there. I recently discovered that a woman in RI found a ketamine trial in RI by contacting the RSDSA and asking about trials that were taking place around the country. You need a doctor referral to get you in.
Lidocaine has also been found to be effective (the longer term infusions). SCS is invasive and can cause spread. So don't just settle for something you don't want. Try to research where this stuff is being offered, and try to get your doctor to help you get what you want.
Good luck and keep on trying. Sandy