Wow, that is sad indeed. I have been blessed in the fact, I was able to get Dr.s who knew what was going on. Although now that I moved south, Dr.s not as good with the whole MG thing and when ambulance came to my home.. they had the nerve to say I was having a panic attack Florida is not good for those with MG {I lived there a short time} I wish you luck with finding out what your other condition is. Turned out my other problem is Alpha-1, still not sure what that is..LOL. Good luck