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Originally Posted by daniella
Hi. Since Mrs D suggested you may want to look into RSD and I have this in addition to PN I was going to suggest going to Cleveland Clinic but that is in Cleveland Ohio. I am sure a neuro there would have knowledge and if you do have possible RSD there are pain doctors who deal with that but also neuropathy. I am curious on how your family dx you. What tests have you had? Can you ask your family doctor to run labwork on you now?
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I have just been diagnosed with small fiber polyneuropathy (both feet up to knees and both hands, one up past elbow). I visited the Cleveland clinic and they were great! Only people who understood and knew what they were doing. Dr Ginny Tavee was one who was great. Take a look at there .