I thought with all the questions from people about what is rsd, or not, that I'd go ahead and post the results I have so far of the survey I made. I wrote it up a month after I was dx'd. It went from May 2003 to May 2005 before it dried up and no one else helped. I picked it up again last month and is ongoing again.

I really thought with so many of us, millions, I'd get more of a response. Others would be rallying to get those "hard" numbers out to the world. Alas, the apathy of others kick me in the teeth. LOL Ok, Here are the results with all 65 people who have filled it out so far.

If you would like to fill it out, please PM me with your email address and I'll send it right out to you.

Female: 89%
Male: 11%

Age at dx:

1-9 yrs: 1%
10-19: 8%
20-29: 18%
30-39: 40%
40-49: 22%
50-59: 11%

Time between onset and dx:

1-3 mo: 32%
4-6 mo: 28%
7-9 mo: 11%
10 mo-1 yr: 17%
2-4 yrs: 8%
10+ yrs: 1%
N/A: 3%

How got RSD:

Fracture: 8%
Fall: 20%
Surgery: 20%
Banged into an object: 3%
Had object fall on them: 6%
car accident: 15%
Sprain: 5%
Other cause: 23%

Limb started:

Cold: 77%
Hot: 18%
Both: 3%
N/A: 2%

Spread: Yes: 91% ; No: 9%


How long before spread:

1-3 mo: 12%
4-6 mo: 12%
7-9 mo: 5%
10 mo-1 yr: 25%
2-4 yrs: 18%
5-7 yrs: 5%
8-10 yrs: 6%
N/A: 17%

Spread type:

Mirror: 37%
Same: 46%
Independent: 3%
N/A: 14%

Had PT: Yes: 95% ; No: 5%


PT:

Helped some: 32%
Made worse: 51%
No change: 12%
N/A: 5%

Abdominal pain: Yes: 45% ; No: 55%

Atrophy: Yes: 80% ; No: 20%

Arthritis: Yes: 60% ; No: 40%

Back pain: Yes: 85% ; No: 15%

Bruising: Yes: 80% ; No: 20%

Cardiac disturbance: Yes: 34% ; No: 66%

Depression: Yes: 89% ; No: 11%

Had depression before: Yes: 14% ; No: 86%

Dizziness: Yes: 82% ; No: 18%

Discoloration of skin: Yes: 97% ; No: 3%

Facial Pain: Yes: 38% ; No: 62%

Falling down: Yes: 75% ; No: 25%

Hair loss: Yes: 58% ; No: 42%

Hearing impairment or disturbance: Yes: 43% ; No: 57%

Headaches: Yes: 75% ; No: 25%

High grade fever: Yes: 8% ; No: 92%

Hot flashes: Yes: 72% ; No: 28%

High blood pressure: Yes: 35% ; No: 65%

Immune system: Yes: 58% ; No: 42%

Itching: Yes: 80% ; No: 20%

Jerking of limbs: Yes: 95% ; No: 5%

Limited Mobility: Yes: 95% ; No: 5%

Low blood pressure: Yes: 45% ; No: 55%

Low grade fever: Yes: 52% ; No: 48%

Memory problems: Yes: 94% ; No: 6%

Menstrual difficulties: Yes: 34% ; No: 34% ; N/A: 32%

Migraines: Yes: 60% ; No: 40%

Mood swings: Yes: 89% ; No: 11%

Muscle spasms: Yes: 100%

Osteoporosis: Yes: 32% ; No: 68%

Rash: Yes: 72% ; No: 28%

Severe fatigue: Yes: 92% ; No: 8%

Sensitivity: Yes: 95% ; No: 5%

Sensitive to: Touch: 26% ; Multiple: 69% ; N/A: 5%

Skin lesions: Yes: 31% ; No: 69%

Sleep problems: Yes: 100%

Stomach ulcers: Yes: 18% ; No: 80% ; Unsure: 2%

Sweating: Yes: 89% ; No: 11%

Visual problems: Yes: 68% ; No: 32%

Weight gain: Yes: 72% ; No: 28%

Weight loss: Yes: 29% ; No: 71%

Alternative therapy: Yes: 38% ; No: 62%

Nerve blocks: Yes: 85% ; No: 15%

Any Help: Yes: 14% ; No: 40% ; Limited: 31% ; N/A: 15%

Other Conditions: Fibro: 15%
Myofacial Pain Syndrome: 8%
Bursitis: 5%
Chronic Fatigue Syndrome: 6%
Thyroid: 6%
Raynaud's: 5%
Other: 25%