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Old 05-08-2009, 09:04 AM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Quote:
Originally Posted by ali12 View Post
I'm still not sure what to do about the botox. I REALLY want the Dystonia to go as it affects my life sooo much but on the other hand, I don't want to make my RSD worse and be put in a wheelchair again. I think we really need to weigh up the pro's and con's. I went to PT on Wednesday and they suggested seeing how the next 2 sessions go and if things dont improve then they want to admit me to do some intense work before trying the botox which I think is a good idea.
There are so many different muscle relaxants they could try before they resort to Botox.

For example. I am on Tetrazepam, I react to it well, it does what it's supposed to and it relaxes my muscles. I once tried Baclofen. What happened? Not much. I didn't respond well to it at all. So maybe it's key to find the muscle relaxant that works for you. Different meds can have a different effect on different people. But I'd try the muscle relaxants first. That's what I'd do... I'd not skip that step and go straight for Botox.

Hope you'll get some great news to share next week about school.

It's really sad about your friend, but hey... thank God for the net, right! And maybe she'll come back for vacations with family.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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