A quick response til I can come back and tell you more. I've had it 15-1/2 years; diagnosed by 5 doctors in FL and NY. Been thru all the stages (hell) and seem to have come out the other end, with, at the moment, minimal issues. I weaned myself off the Neurontin earlier this year. My onset was the result of a massive stroke in '91. So, keep your spirits up and email me if you wish! :-)