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Originally Posted by blackcompe
I actually had many visits with world renowned otolaryngoligists, and they were totally puzzled. One of one was a friend of a friend. So, you can tell this isn't easy. On a better note, I found some articles online this week talking about several types of Tinnitus (even painful ones) and some partially effective treatments. And, I found out Tinnitus is common after a head injury and the symptoms match up. Too bad ENT's can't see that after 8 years of hitting the books.
I don't know if I mentioned this earlier, but I am only 23, on disability, and in major debt from college. I had to leave college because this condition is so debilitating. I've been dealing with a 4 year long headache from plugged ears. Its been hell trying to diagnose myself and order/ask for different medications to try. Everyone gives me ****, but I'm still dealing with the problem, so how can you blame me. We pay Doctors to fix our health issues.
I have appointment with The Neurology Department of The University of Pennsylvania Monday. I am not that hopeful, anxious if anything, but hopefully I can get a script for Baclofen. Its a anti-spasmylotic agent that shows efficacy in treating tinnitus. It un-contracts contracted muscles through the modulation of GABA nuerons. Its also used to treat multiple sclerosis. Its likely that my head injury caused a slight disruption in my CNS, and my ears muscles are highly spastic.
I'll post if it works. I would never want anyone to live through this, if I can help it.
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Blackcombe
I had a fall on new years day because I had a hypoglycaemic attack being diabetic, I hit the upper left side of my head which left a laceration. 2 days later coupled with the anxiety, depression a pulsating hiss started in my right ear which one night turned into a loud ringing for a short time, with the blocked plugged feeling in the ears. Since then I've been to ENT specialists, they found not fault even though they only done a hearing test, the doctors but they wont refer me for an MRI, Accupuncture not much use, cranial osteopathy only once but I felt it helped a bit, reflexology good but too many adverse reactions. Like yourself for the first few months you may have had sleep disturbances and noise sensitivity. At the moment I'm having Cosmodic Therapy/Scenar treatment. Which has reduced the tinnitus to being very faint, but there is still that horrible blocked feeling in the ears. At the start of the week my right ear got inflamed which magnified the tinnitus so the doctor gave me some drops which so far have helped in the noise reduction but the tender blocked pain is still there. Throughout February - April I went through periods where I felt suicidal believe me. And doctors still wont refer me for an MRI, so in the middle of the week I went to another surgery asked fro some forms to register as a new patient, after being a patient at my current surgery for nearly 30 years. I felt different after my head injury for a few months only recently is my old self starting to reimurge. I understand what you're going through. I'm just assuming it's PCS Post Concussion Syndrome or is it TMJ disorder?? I haven't had any help at all, I haven't been diagnosed. No good treating the symptom until you find the cause or fault. My cosmodic therapist says the problem is coming from the ears?? and it's gradually healing. I do not want to experience another head injury, didn't realise the symptoms can be so debilitating and make you miserable, my energy levels have been affected too.
I'm going to see a top well known 'spiritual healer' soon. I've had spiritual healing before and it has helped on a number of occassions.
Hope my new doctor will be more supportive and refer me.
Billy