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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Hi ConnieS!
Hi Connie! Welcome to Neurotalk! It is a GREAT site for information and tons of really caring, wonderful people to help you along your way!
It sounds like you need a new neuro. Obviously the one you have right now isn't suited for his/her job. I think a lot of people will agree that when dealing with something as serious as MG, a caring neuro who actually LISTENS is the one you want to deal with!
I am still a newbie with this - I was dx'ed a yr ago and had my thymus removed as well. I am one of the "lucky" ones who has a GREAT neuro, but I am the exception to the rule.......sigh........
Are you on any meds? Mestinon? Anything? If you are really weak, you NEED meds in order to regain your strength............
You sound like you have all of the "classic" MG symptoms. If you are weak, please REST! MG isn't something to fool around with and you cannot "push" through it..........it will just make you weaker.
Once you ARE dx'ed and on meds, you will feel so much better. It does get better!
Hang in there!
Erin
Quote:
Originally Posted by ConnieS
Hi,
Am new to this forum, and am glad I found it as where i'm from, there isn't much info on MG and there aren't any groups or associations whom I can turn to for answers.
I'm being tested for Mg currently, and am still awaiting the test results on my blood and it takes 10 weeks!! My neuro isn't exactly helpful, and there's just so many questions going on in my mind, as its test after test but yet he has not told me anything about what this is. I've donｅ the EMG but its negative.
I've been experiencing weakness in my hands and legs for close to a year now, and since Feb, the facial weakness is starting to affect me. Vision is blurred and I'm having problems reading, eyes cant seem to follow long paragraphs well. So please pardon me for this upsizee of words. Find myself having problems pronouncing words properly, think its difficulty controlling my lips somehow，so find myself speaking really slow. Can't really open my mouth big enough to stuff certain foods in too. Are these symptoms of MG as well? If so, how do you all cope with the slurring? What tests did you have to do before they got you diagnosed properly？ 
Would really appreciate any reply. |
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Erin
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