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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Hi Cricket!
Hey hon! Are you feeling better? How is your head? I am so sorry you are having such a rough time - just ain't right........
Why did your dr take you off the Imuran?
MG just sux! It takes away all normalcy in our lives - there is no in between. Either we feel great or awful - no in between......hate that......sigh......
Have you asked about the plasma exchange? It isn't fun @ all, but neither are mind blowing headaches or "house arrest"...........
Hopefully they will slow it down - the rate of the IV IG - I loved having mine going as fast as possible, but my neuro made them reduce it from 360 mL and hr to 150 (max) in order to prevent kidey damage.......
You just take it ez and take good care of yourself - you are lucky to have such a great hubby!
Big, big hugs!
Erin
Quote:
Originally Posted by cricket001
I had a few soda's prior to the infusion...but next time...I am drinking tons and tons of water before, in between....and after!!
Also, infusion went in over 3 hours....2g/KG...I will also ask them to slow it down....
But the problems didn't start until the next day...after I got home...Doctor told me to stop taking the imuran too...
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Erin
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