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Member
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Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
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Member
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
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hi im with you i have full body and organ involvement i was 16 when i got rsd that was 11 yrs ago and like you mine spread from my right shoulder arm and neck to all fourm limbs in 5mths. i had not one doc that could decided what was wrong with me or if i was just faking.. i know that it is hard as a parent with RSD period . there are a some of us that deal with this daily .. yes sometimes the sinking feeling of what will be next does over take you more than the pain. if this PM isnt willing to help you need to find one that will. there are good docs out there the problem is finding them.. it took alot of bad ones for me to find that good one. and like you blocks dont last on me more than 4 hrs if im lucky
but my doc is willing to do what he can to try and help keep my pain down as far as he can..
but just so that you know it does get better not pain wise but managable wise.. you learn to do things in a different way and to cope alittle better
hang in there hun
pm me anytime you want
carrie
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hope this finds all in less pain .
rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,
please check out our website to help bring awareness to RSD!
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