Quote:
Originally Posted by Jennelle
So, not all of you know my story although I feel close to many of you. I hurt myself sliding a 10yr old 250lb girl up in bed while I was working as a pediatric nurse. Initially we thought it was all pulled/torn muscles in my neck and shoulder....then the tingling in my left hand...the numbness...the color change. A lot of test and dx with rsd early in the process. Not long after finding this site it spread to my right arm. Now I have had another bonescan,mri, and emg. My left shoulder joint is very loose, I have a herniated disc in my back and the worse of all...after a week of hell was once again diagnosed with a spread.....ALL LIMBS. I think the sinking of hope is worse sometimes then the pain...or maybe the pain is the same. Any of you ever had so fast a spread? I used to be a runner....now my left leg is always swollen and both my feet turn purple. I had to fight with my pain doctor for recovery meds....good news he'll do another block...just one and I get to pick the limb. Since the last one only lasted 3 hrs I am not even looking forward to it. How do we all do it....how do we live our lives and not loose hope after it slowly takes over our lives....In less than a year I have gone from an active fun-loving 29year old nurse, step mother of 3, and sister/daughter to a 30 yr old woman in an 80 yr old body. I want to thank you all for being there for me so many times and with all my questions. I think this site has kept me sane. I have made some good friends who I know I will continue to keep close in my life as much as possible. I am just having a pity party right now....I was hoping to have a child of my own soon...now I don't see how that could be possible. I have spent years taking care of other people's children (both at work and at home) and I think this is what hurts the most. So for any Mom's out there....can you give me hope? I have put my life on hold for so long already...my wedding, having children....working. I am scared Jennelle
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Jennelle,
Don't live too much in the "now".
While you must come to a point, where the "Now" is great, you've also got to find a source of strength!
I've had this monster, for well, a long time, since 1983. With Tos.
And, add to that, since 98 a TBI, with Discs neck, and low back.
I'm a total mess.
Yet,
Read your post.
You Laugh, You live!
Like most of us here.
Even in and with our depression, so too, do we!
It's with each other here, yea, we can recommend this, and that doctor for this and that.......but, what I find so important about this site, is the "Brother/Sista/Humanhood" where we ALL find common ground!
WE don't question each other. We take one another at face value. There is NO Judgement!
Our Families will surely judge! So too, may some of our Friends!
Not here.
What you say, is taken at face value.
I understand, I hear what you say about your fright, you wanted children of your own.
That may still be possible. Speak to your doctors,
AND,
Please,, Be Sure, that you have the BEST Doctors!
There is Nothing wrong, with "doctor shopping".
They'll only want to make sure, you're not "drug shopping".
So just be straight up with them all, and tell them, if that's your choice, to "shop".
I cannot advise you much, on having your own children. I have two of my own, that I raised myself
(with rsd), and I remarried a golddigger, and now my children no longer speak to me.
I must get this divorce finished.
So, I hear your plea!
I do.
This, is a "Tough Row To Hoe". Of that, there is no doubt.
But,
God would not have let it fall upon you, if he didn't have FAITH IN YOU!!
Jennelle,
God loves you,
And,
So do we!
Keep talking to us?
pete
asb