I think you'll find you're in good company, unfortunately. Thank God, I don't have a lot of problems with hydro, but I hear you about the "Well, you obviously don't have spina bifida, so what are you b!tching about?" People are utterly clueless, including doctors. Comments like this get a story from me about one of my best friends who died after more than 100 surgeries for hydro. She didn't have SB, but hydro complicated her life and may have been partly responsible for her death at 34 yo.
I challenge HA and other hydro groups to do something about this. Let this be the decade that hydro "comes out of the closet" and becomes better-known to ordinary people.
((((((((((((((((HUGS)))))))))))))))))) to you, too!
LIZARD