Rachel, I have never heard of "Loeys-Dietz", but I will look it up. I just saw my Neurologist. They worked me in on short notice, so he did not have a "normal" length of time to go through everything. He ordered some tests ... asked me why my Primary Care
Physician sent me to see a Neurologist when the PCP can order the same tests. I told him my PCP probably was not familiar with the symptoms, but who knows. My Neurologist and
Rheumatologist are thinking I am presenting symptoms from multiple diseases. Maybe my
knee problem is like yours, but my foot/ankle problem is another "disease" while my hip problem is a third disease. THAT is a scary thought.

Answering your other questions: I do not have flat feet, I have high arches. I don't wear medial "orthotics" but I do wear an over the counter arch support.

I will go to the hypermobility dot org website today. Thank you. People like those on these forums can be of great help. I sure learn a lot from you.

I have even considered summarizing all of my medical problems and sending them to the TV show "House". Let him figure ME out. Most doctors seeing me for the first time say something like, "Wow, you are a mess." Then I laugh and tell them it could be a lot worse. The doctor says "How?" and I tell him I could be married to his sister and he would have to see me all the time. They usually laugh, then get busy. I am seeing nine specialists at this time. (I had to look at my list and I was right, it is only nine right now, I detoxed off the morphine/opiates and dropped one doctor)

pabb, I asked my Neurologist about surgery for nerve damage, as opposed to spine damage and he said he would call me on it. This doctor makes phone calls up to about 9pm at night. My wife reminded me that the group of doctors who declared me 100% disabled originally said it was a combination of problems that made the surgery so difficult. Tissue damage, skeletal damage and nerve damage and .... too much damage for now.

I am still lucky. I have a supportive wife and family as well as this forum, thanks to all of you for your suggestions.