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Member
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Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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Member
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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Quote:
Originally Posted by KAREN1202
Southie,
How many years were you on dialantin before they took you off of it? My husband has been on it for most of his life. I think I would be terrified if they took him off. Like you said it has been old faithful!
Karen
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Hi Karen;
I had been on Dilantin / Phenytoin since 1980s;
however - it was the titration (dosage) levels that
I was on which exceeded the recommendations
(which ranged from 200 mg B.I.D. to 300 mg T.I.D,
and mostly at 300 mg T.I.D.) - which at the blood
level range (normally required) would have shot
through the roof in the normal recommendation
levels ---> the point was this: IT WAS WORKING
was the main issue right there, not so much as
what and where the blood levels were reading up.
However, it was also a costly pay-back after so
many years of being on it at such a high titration
of being on it (in spite of their attempts of trying
various other medications, which unfortunately,
always ended up being back on Dilantin - the
"old faithful") -- as it is implied on the original
post...
If I had my way, I would go back to Dilantin,
I do like Zonegran very much - but if I were to
compare between Zonegran and Dilantin personally
(not as a Medical Doctor) --> I pick Dilantin. However,
they've changed Dilantin / Phenytoin; so I don't know
how these new Kapseals are or their impact/effect.
================
As for Lamictal ---> that's gone to the "Hasta La
Bye Bye" ---> into the A E D Allergy list.
I have no idea what my Neurologist has in store for
what lies ahead; he had been so busy that my appts.
had been pushed back. So I am somewhat a little
nervous as what's next?
__________________
Sharon
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" Vujà Dé - The feeling you've
never been in here before!"
Daily Feedbag of Zonegran, Clonazepam, and Folic Acid
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