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Old 05-11-2009, 09:50 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Hi Mary!

You should have seen me @ 80! I was on that for the longest time!

Right now I'm @ 30, but it was just tapered after the last IV IG - from 40 - my neuro tapered it so quickly before that I actually had a crisis, but overall I have been @ approx 60 for a year now!

Your Willy Wonka comment was so funny! That was great!

I get my blood work done every 2 weeks (b/c of the Imuran) and so far everything has been GREAT! Granted, I take a boatload of supplements, but they keep me in check. My blood pressure is great too! In fact, some days it's too LOW - go figure!

Can't wait to hear from you!
Erin

Have a great night!
Erin






Quote:
Originally Posted by maryec View Post
When I am up above 30 mg of Prednisone daily for long term, in the past, I blow up in the cheeks, & neck area. I feel like the Blueberry girl on Willie Wonka ! I told the Doctor that once, got him laughing.
I go between 10 - 20 mg now, I try to keep it to 10, but when things act up, I go up to 20 for a few weeks, & ween down to 10 when I can.
Erin 60 mg, for a year, wow, I have done the 60 mg for a few months before, but have weened down 40 than 30 stayed there for awhile. than managed to get down to 20, it was a struggle though, things kept acting up.
You look great for being on 60 mg of Pred. , long term, how is your blood pressure, & cholsterol ?
Hope you can get down on that !
Mary
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