Hi Connie,
I understand your frustration! I have been diagnosed with MG "clinically" by my symptoms only....as all of my tests so far have been negative. I have been trying to run from the diagnosis of MG...because I haven't seen any hard nose facts that I indeed have it...but I am facing the facts now!
Neuro just this week..sent out some more blood for the MuSK antibiody...mestinon has been a big help...which apparently also indicates to the neuro that I have MG. IVIG has finally kicked in..and my headache from that ordeal is finally over...I have had a wonderful day!
I honestly thought I was going crazy..slurred speech..and blurry vision...I couldn't maintain good eye contact...my husband said that my speech was not as bad as I thought it was...my tongue felt like it is swollen..(it still does)...I started to get very anxious about talking..and I tried to avoid talking as much as I could...I felt like everyone was staring at me over this.. Doc put me on cymbalta and I has really helped me socially with this...
I have been told to try to avoid stress and take it easy....this is hard...wonder if the doc would give me some ativan for this...along with the cymbalta..(probably not
)....
I hope you don't run from the facts....I am feeling much better since I have been following the doctor's orders...as well as...doing alot of research on the subject...this forum is great...with a lot of knowledgeable people here!!!! I, like you, have no resources here in my area...the support groups around here ..have apparently dried up...this forum is the best "personal" resource that I have found!!!
Stephanie
Quote:
Originally Posted by ConnieS
Hi,
Am new to this forum, and am glad I found it as where i'm from, there isn't much info on MG and there aren't any groups or associations whom I can turn to for answers.
I'm being tested for Mg currently, and am still awaiting the test results on my blood and it takes 10 weeks!! My neuro isn't exactly helpful, and there's just so many questions going on in my mind, as its test after test but yet he has not told me anything about what this is. I've donｅ the EMG but its negative.
I've been experiencing weakness in my hands and legs for close to a year now, and since Feb, the facial weakness is starting to affect me. Vision is blurred and I'm having problems reading, eyes cant seem to follow long paragraphs well. So please pardon me for this upsizee of words. Find myself having problems pronouncing words properly, think its difficulty controlling my lips somehow，so find myself speaking really slow. Can't really open my mouth big enough to stuff certain foods in too. Are these symptoms of MG as well? If so, how do you all cope with the slurring? What tests did you have to do before they got you diagnosed properly？ 
Would really appreciate any reply. |