Hi Stephanie,

I know how you feel, I use to have a shower and go back to bed to recover. I couldn't even put my hair in a ponytail!!
Forgive me, but theres lots of people on the board, and my brain doesn't remember what medications everyone is on, but are you on Mestinon timespan. I started it about 4-5 months into my diagnosis, and it really helped me in the mornings until I could take my morning mestinon.
Kate