Thread: thanks!
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Old 05-13-2009, 08:29 AM
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
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I finally learned I had to modify my getting ready routine in the morning. You have to start a little earlier, but it's worth it. Plan to take a little break between segments.
I bathe/shower - 5-10 mins sit down - makeup - sit - blow dry - sit - curling iron - sit. I also got one of those little stand mirrors so I can sit to put on makeup.

I have to sit in a recliner with neck and back support to relax those upper body muscles. Just sit with eyes closed and don't use a muscle. This helped me with getting ready.

Kate is right about the Mestinon 180 (or timespan). It's time release isn't generally considered reliable enough for day use, but it does help to cover through the night and with the morning drags. Talk to your neuro about getting on it if you are waking up dragging.

Another thing to consider is a sleep study for apnea. I was dragging so bad in the morning, even with the timespan. They discovered I had apnea which I believe is fairly common in MGers. It helped with the energy level throughout the day and mental clarity too. They discovered I was getting virtually no REM (rejuventates the mind) OR Deep Wave (rejuvenates muscle) sleep. Combine that with MG and you have a real mess! The best part is, NO PILLS necessary to correct it - just the CPAP.

Some people find the CPAP to be a pain, but we've actually had some fun with it! My granddaughter named me Darth Vader the Elephant because of how I look and sound with it on and trying to talk! I'm now just DV the E at night!
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Becky
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