Hi,
i wish my 12yr old daughter would get on here and read some of your stories. i reckon it will help her to see that she is not alone.

My daughter was born with dandy Walker Malformation and hence the hydrocephalus. She has a VP shunt inserted since 7mths old.
2006 the shunt broke from the neck down.

they reapired it but the first coil is still in her as they couldnt find it.

since then she has now got chronic pain and headaches everyday. in and out of hospital relaeased no temp but you can see she is in pain.

she also has to have her room in complete darkness when she gets really bad.

at the moment she is very quiet as the headche is about to reach its peak. she also suffers from sore ears no infection just ears really sore and they outside of them turn red to purple when pain is at it's peak.

She is homeschooled through the Northern HEalth School her in NZ for the last year now as she is noise intolerant bu they are trying to introduce her slowly back to school. she dont want to go and i dont think she should be forced either. What use think????

May be i could encourage her to read your guys stories so she can talk freely to those her no what shes going through.

Can you all help me to do this????

i would be grateful
Mother who dosent know how to help her child sometimes