Hi Erin,

Thank you for such a warm welcome! I am not use to being able to reach out to anyone no less so many understanding and kind people about this disease. I started to cry when I read the replies to my post...I was so overwelmed.
There was so much I wanted to say in my post, but I didn't want to ramble on so I made it as short as I could.

You are so right about this being a 'tricky little disease'. As 'well' as I've been, I did go into a crisis and spent 5 days in ICU. It hit me with little warning and once I recovered, I went right back to feeling like I was before it happened. That will be 3 years ago this August...the heat was a big factor. I once read where a doctor wrote something to the effect...It's the constant unexpected of this disease that makes it so insidious... I truly understood what he meant after I was blind sided on that day! (:

I apologize for rambling on, but thank you so much for listening. It felt so good to actually put that in writing knowing the person reading it really understands. This is an amazing site!

I hope you are feeling well,
Pat