Your story is very similar to my story, I really feel for what you are going through. I went 15 months without a diagnosis but I can actually tell you that it can get better. I would do a little searching and try to find a good neuro in your area and have your dr. refer you. I was going nowhere with my first neuro because he wanted to wait and see if the symptoms went away. My second neuro was very interested in my case and finding a diagnosis. This site is an excellent support system ... so glad that you found it.
Take care ~ Melanie