Quote:
Originally Posted by kmeb
I've got large/small fiber PN with demylination and great deal of fiber loss and axon degeneration - genetic - full body... that pretty much sums it up... the autonomic portion includes gastroparesis - I am able to survive on liquids at least, a good thing - but wonder if any of you who have heart complications have cardiomyopathy?
I've had heart rythim problems for years that require constant meds and monitoring but thats ok - the meds keep things working ok for the most part and have stopped some serious tachy runs in the past. But I'm developing over the last few years progressive cardiomyopathy and recent tests show kinda a big progression (shows on enchos and BNP bloodwork) - does anyone know if this is a typical manisfestation also of the autonomic symtoms? (its typical for amyloid and I've had positive and negative biopsies over the years for this - but they havent been able to pin it down so havent worried about it - my cardio is leaivng it up to me if I want the testing cause theres nothing really more to do then control the heart symtoms because of the severity of the PN cant have any traditional amyloid treatments anyway)..
Again, anyone find this typical for your auotnomic complications?????
Appreciate any feedback  |
Hi Kmeb,
Long time. I don't know if cardiomyopathy would be typical of autonomic neuropathy. I have read on many sights that autonomic symptoms can present with cardiac manifestations such as tachycardia or bradycardia. I go tachy sometimes myself and had extensive cardio work-up that was inconclusive. I am also on a Beta Blocker. My brother has heart disease, it started at 35 with left bundle branch block or BBB that caused a big heart attack. He was very unwell for about a year but he is ok now. My mum also has BBB and my mum has told me that my grandmother was on heart medication since she was a young woman for moderate arythmia. She lived until 86 with this condition. None of them have or had PN only me. Too what extent PN affects ones heart is unclear to me. But if they are offering you a work up maybe you should think about doing the testing. It may not be autonomic related.