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Old 05-17-2009, 02:46 PM
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Join Date: Jul 2007
Location: Yorkshire, UK
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Thanks for posting this.

I read the article a few days ago as it was sent out through the RSDSA newsletter (if you go to the RSDSA site, you can sign up for a newsletter where they send you all of the latest info on RSD and other similar disorders) and thought it was really interesting.

I'm glad that they are now admitting that RSD is a neurological illness and that they are trying to get more Neurologists to treat it. Hopefully that way, the Neuros will have more ideas as to what might help and try and find a cure for it rather than just give us all lots of pain meds.

I was especially interested in the topic about casting an RSD limb. I have severe Dystonia in my left leg (the one with RSD) that doesn't respond to any therapy and my PT's have now made a removable splint for it that is made out of plastic. It is supposed to bring my leg back into a normal position instead of being rotated out to the side but it doesn't seem to be helping that much right now.

I will have to talk to my PT's with my mum and ask if it is possible to use another removable splint to work alongside the other to see if that would work any. It's interesting that they are saying that more than one splint is often useful. I have only ever used one splint and I had my leg casted before I was diagnosed and it made my RSD a lot worse.

Thanks again for posting this - it is very interesting and i'm sure it will help many others!!
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"Thanks for this!" says:
Dew58 (05-17-2009)