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Old 05-17-2009, 10:39 PM
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
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Stephanie and Erin - I like you, never liked the way alcohol affected me - I think it's because instinctively we felt the effects of MG, which I know on me started long before it MADE me take notice!

Stephanie, I have a job I just love too. The people are so wonderful and my job is challenging and rewarding. I'm fortunate that EVERYONE I work with have been willing to jump in and cover for me while I've had to be out, and my boss allows me to set my schedule when necessary. They have set me up with a laptop loaded with the programs I need to do at least part of my job from home.

If you have a job that you can do any part of from home, maybe in the evening when things slow down a little, perhaps you can work something out until you get your MG under control again.

Take them information about your disease, and be real honest in that you can't say how long it will take, but that you love your job so if there is any way you can work a shortened schedule for a while to help you to recover, you would love to do that.

If that doesn't work, can you have your 14 year old give you a while when you first get home to kind of switch gears? Maybe take an hour to read and unwind a little before you have to put on your mommy hat? Naturally, your children will want some attention when you first get home, but then if you can lock yourself away for just a little while..... I feel for you! I was fortunate that my MG didn't hit really hard until my kids were 16 & 18. But my husband does have his own business that I do the books for - needless to say, everything didn't get paid on time when I was struggling, and the books fell behind for a while.

Another thing that really helped me was seeing a psychologist. She gave me some very helpful tools and suggestions about how to deal with my emotions, anxiety, and concerns of the future when I had my first serious bout. It's surprising sometimes how they can simplify something we make so difficult. I know it's another "appointment" to pile on, but can be well worth the time and money!

As for the drugs, the pharmacists are definetly the best source for finding out which drugs can interact and the addiction factors. It sounds though like you would recognize if you start wanting them when they're not really needed. I was on Actique suckers (Phentenyl) for breakthrough pain from my neck for a while. LOVED them, but figured out I started thinking "oh, my finger hurts a little - I'd better get an sucker" and that was the end of them! I won't get another script for them - ever (well, if they said I was terminal and it would be in the next couple of months I'd beg for them! HA HA)

Good luck, I hope you find some good resolution that you are comfortable with.

BIG hugs - I know you need them right now!
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