My first crisis was actually what got me diagnosed. I have asthma and have since I was child. I've been hospitalized for asthma attacks in the past.

I had just finished a very long round of steroids for my asthma during which I felt amazing. About two weeks following the last steroid dose, I experienced double vision, drooping eyelids, had trouble swallowing & then breathing became very labored.

I thought it was another asthma attack, but it sure felt different and my FACE looked like it was going to fall off.

I was diagnosed in the ER of our small hospital by one of the new ER docs who has a mom with MG. Perhaps the steroids I had been taking off/on for years for my asthma had been masking/ treating my MG symptoms. I had a Tensilon test in the ER & could not get over the short lived difference.

I ended up in the ICU for 4 days, but once I got some Mestinon & more steroids I did do better for a while. I had a thymectomy 6 months later.

That was 10 years ago, seems like yesterday though.

Jenna