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Old 05-18-2009, 12:31 PM
Brennan068 Brennan068 is offline
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Join Date: Oct 2008
Posts: 313
15 yr Member
Brennan068 Brennan068 is offline
Member
 
Join Date: Oct 2008
Posts: 313
15 yr Member
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I developed MG in the fall of '07 - symptoms were light and only showed up when I was very tired... they went away after sleep so were attributed to just being tired. By the spring of '08 I had full blown ptsosis on left side, marble mouth and couldn't swallow much of anything. I was diagnosed in April of '08, had my thymectomy in May of '08 and spent until last week recovering from the thymectomy, radiation therapy for the thymoma, pneumonias from the radiation burns and excessive weight loss.

The ptsosis went away immediately with the thymectomy. It was gone before I was out of hospital. The marble mouth was next to go at around 6-7 months or so and the swallowing is gradually getting better over time. I constantly try things that were "impossible" a few months ago to find that they work fine now. Spicy foods still jam up the swallower though... that'll come with time

Last week I started a graduated return to work; half days for a month. I'll be moving up to 6 hour days in 3 weeks and do that for a month and then to full 8 hour days. The 4 hour days are great . Go in for 8, go to the gym at 12 and then home to sit on my deck in the sun with a cool beer.

Brian

Quote:
Originally Posted by Pat 110 View Post
Hey Brennan,

I'm pretty new here so I'm not familiar with your situation. I use to have the choking & swallowing problem a lot, but fortunatly it only sneeks up on me once in a while now. Of course you don't know when it's going to happen. I love Thai food too, but I can't eat it anymore...not because of the MG...it's an age thing now! When did you have your Thymectomy? I had mine in Nov.02

Pat
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