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Old 05-18-2009, 01:29 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Default Hi Brennan!

Isn't it amazing how far you have come? What an inspiration for the rest of us! I love to hear stories like yours - they always give me HOPE!!!!!!!

So, you are finally given the green light to return to work? I bet you are going to have a blast! I know I miss it, but right now it just isn't an option - just too hot here for me to get out...........

I know what you mean about the thai food - used to love spicy food but cannot handle it now - I wonder why?

Big hugs!
Erin






Quote:
Originally Posted by Brennan068 View Post
I developed MG in the fall of '07 - symptoms were light and only showed up when I was very tired... they went away after sleep so were attributed to just being tired. By the spring of '08 I had full blown ptsosis on left side, marble mouth and couldn't swallow much of anything. I was diagnosed in April of '08, had my thymectomy in May of '08 and spent until last week recovering from the thymectomy, radiation therapy for the thymoma, pneumonias from the radiation burns and excessive weight loss.

The ptsosis went away immediately with the thymectomy. It was gone before I was out of hospital. The marble mouth was next to go at around 6-7 months or so and the swallowing is gradually getting better over time. I constantly try things that were "impossible" a few months ago to find that they work fine now. Spicy foods still jam up the swallower though... that'll come with time

Last week I started a graduated return to work; half days for a month. I'll be moving up to 6 hour days in 3 weeks and do that for a month and then to full 8 hour days. The 4 hour days are great . Go in for 8, go to the gym at 12 and then home to sit on my deck in the sun with a cool beer.

Brian
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Erin
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