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Old 05-18-2009, 06:51 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Default HI Gene!

Hi Gene! 80 mgs of Pred - dang! You should feel that pretty soon! I actually liked the feeling of 80 - gave me energy not to be believed!

It also gave me wicked panic attacks - chest tightening, hard to breathe, chest pounding - so much so that I called the hosp several times just in case.....
Xanax has helped with the panic attacks, though I do still occasionally have them...nothing like b/4 though!

I also have hot hands and feet - so much so that the last guy that admitted me to the hosp shook my hand and his hands were so cool that I grabbed both on them in mine and held on - now he thinks I have a crush on him and finds me whenever I'm in the hosp - LOL!

I sweat all of the time as well. All night long. Have my therm. set at between 65-70 with 4 fans on me and wake up drenched every morning - every morning.........I keep an ice bag handy to help with the heat issues....

Did you ask about the plasma exchange? Like I said - it sux but is usually pretty effective........

You do need to talk to your dr about the chest pains - don't ever assume they are the meds.......better safe than sorry.....

There is a light @ the end of the tunnel and you WILL reach it! We all will!

Big hugs!
Erin

Quote:
Originally Posted by GeneZ View Post
Thanks Mary,Kate,Maurice,Becky, Erin for all your kind words of encouragement. I have had some improvement in the severe weakness since starting the pred but my eyes are still the same..... darn double vision. I will up my pred to 80mg.a day tomorrow,having hot hands and feet ,is this side effect from pred? Also waking up at night with a chocking / tight feeling in my chest,should I be concerned or is this the pred?This is an awesome site.... I pray blessings on each of you as we face this disease together... Later
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"Thanks for this!" says:
GeneZ (05-18-2009)