Thread: Eye problem
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Old 05-18-2009, 08:56 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Myla, Hi. Droopy eyelids can be from lots of different things. Look up "ptosis causes" on Google.

Do you notice if you have double or blurry vision? Are both eyelids drooping? If you do what's called an upward gaze where you keep your head still but just look up with your eyes, does it get worse? MG ptosis gets worse with upward gaze.

Can you get your ophthalmologist or primary doc to refer you to a neuro-ophthalmologist? They can do tests to figure out what might be causing it.

Definitely get the Acetylcholine Receptor antibodies (binding, modulating and blocking) done again, plus the MuSk antbody test. A lot can change in TEN YEARS!!!

Wheezing is a sign of inflammation in the lungs and could be asthma or bronchitis. Do you have a pulmonologist or allergist you could see? You really need a specialist to see you.

Wheezing is not a symptom of MG, but lots of that other stuff is!!! Any weakness of skeletal muscles that gets worse after activity and relatively better with rest is a sign of MG.

Just get a neuro-ophth. to help. And ask your neuro for more tests, like a SFEMG too! Ten years without answers is crazy. Have they tested you for polymyositis (creatinine phosphokinase blood test)?

I hope you can get some answers soon.

Annie
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