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Old 05-19-2009, 08:53 PM
Lucy Lucy is offline
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Join Date: Sep 2007
Location: New Zealand
Posts: 317
15 yr Member
Lucy Lucy is offline
Member
 
Join Date: Sep 2007
Location: New Zealand
Posts: 317
15 yr Member
Default Margie

Hi, I didn't get any decent help until I found a GP that understood head injury.

I hit my head 2x within 6 weeks in 2001. I kept trying to work full time as the A&E doctor kept telling me "that he knew about people like me because I used to work for an insurance company" . I thought I was going crazy and in the end my employer spoke to a friend of his who had been a doctor in the local hospital head injury unit - who then arranged for me to see Dorothy Gronwell - you will find reference to her in other threads. Dorothy then tested me and put me in touch with the local Brain Injury Assn who then referred me to my current GP - who has been wonderful as he had PCS from playing rugby when he was at Uni.

Our Accident Compensation system takes over payment and arranges your recovery - supposedly. I have learnt that if you don't like what you are told keep looking for another specialist even if you have to fund it yourself. I was constantly being told that I was achieving great results in the psych testing and therefore there was nothing wrong. The hardest part to cope with is not being able to see any physical evidence of injury when you know that your brain is not functioning as it should be and was.

I went to Australia for my QEEG which does show evidence, but unfortunately the report is not rated here!!!! I now have a psychiatrist who I trust - Dorothy Gronwell died several years ago - I was able to trust her, but the psychologists that I have been sent to have been down right rude and have even asked why I know so much about head injury - can you imagine!!!

Really all I am now wanting is to be able to stay awake all day - to be rid of the tiredness - I think that I could cope with the rest of it. You also need to retain your sense of humour - I sure find some strange things in the refridgerator!

So you will need to be pushy even stroppy in finding the specialist that you can trust who has knowledge of head injury. If you can find the right one they can probably recommend other specialists who can help you. You will notice that the best usually only deal with the best.

I am now taking the following:

Efexor 3x 75mg (for depression)
Hyzaar 1x 12.5mg (for blood pressure - as it has gone crazy post accident)
Nortriptyine 3x 10mg (for relaxing muscles at night)
Zopiclone 1x 7.5 (for sleeping - as can stay awake for days)

I have also come across res-v plus - a dietary supplement - have a look at www.abouthealth.co.nz. I have taken these for about 10 days and am thinking that I MIGHT be feeling a little more energy- the main ingredient is resveratrol.

Good luck and let us know how you get on!

Lynlee
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"Thanks for this!" says:
margle (05-20-2009)