I'm so sorry that you're having to deal with RSD. As you've experienced just getting a diagnosis can be difficult when you KNOW your pain is not normal and, of course, the delay in treatment is not a positive thing. I just found this forum a little while ago but feel like I've found a home...a place that is comforting, informative, caring. For the first time I don't feel like I'm fighting this thing alone. So welcome home. My RSD started with a tibia plateau fracture which didn't help the knee any. I bought a "bed bar" that lifts the bed linens the whole width of the bed keeping them off my leg and use a heating pad in the space to warm it up. Didn't know if you'd heard of this but it's been a godsend when the pain gets bad. Lynnie "ONE MOMENT CAN CHANGE EVERYTHING"