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Old 05-21-2009, 03:43 AM
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Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Hey everybody!

I've been a lil MIA lately!

I'm working too hard to get everything that needs to be done at home DONE before it gets too hot to work in the yard, working too much at my job, not sleeping enough, and getting ready to start another job in addition to everything else. I'm actually looking forward to this, since it's a job I love and I can't wait to restart it!

I had to do a bunch of recerts too so I have been averaging about 4 hours of sleep a day. I'm beat, my sleep schedule is way off and life is still good!

I go for # 26 today!! Yay!!
I plan on taking a few minutes to celebrate!

I couldn't sleep so I got up to putter and I was thinking about how it's been TWO YEARS since I started Tysabri. I've only missed one infusion and I am just so pleased with the NON progression and the NO DISABILITY that has come from this drug. What a freakin' miracle this stuff is for so many of us!

I know I wouldn't be able to do what I am doing now if it wasn't for Tysabri. All the carp before is almost just a bad memory now, the cycling through the relapses, the vision problems, the balance garbage, the cognitive malarkey, and the utter despair in knowing that I was losing me!! Having all that blackness turn to joy is amazing!

Time IS brain, my friends. I'm so glad I still have mine and that you all still have yours and that we can come here and rejoice in our triumphs and find support when it's not going so well!

Today will be a GOOD day!

__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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ewizabeth (05-21-2009), Natalie8 (05-27-2009), PolarExpress (05-22-2009), SallyC (05-21-2009), Stacer (05-21-2009)