Thanks so much everyone for all of the information - I really appreciate it and am sorry to hear that so many of you suffer from dizziness also!!

I have still been feeling dizzy today. I went to the school centre this morning and went dizzy when standing but thankfully was able to sit straight back down before things got any worse.

I know that RSD can affect your blood pressure so i'm not sure if it's that. I think it might be worth getting a blood pressure moniter so that I can check it for myself. I did mention it to the PT's yesterday but they don't specialise in treating RSD as my leading PT wasn't there so they couldn't give me any answers really.

Pete - Thanks for responding. I'm going to get my mum to talk to my doctor about the fainting/dizziness if it persists!

Ada - Thanks for the info! I'm sorry to hear that you are dealing with all of that right now ((hugs))! My posture problems are from being Hypermobile my PT's think although they aren't sure if I have any other back issues underlying that - they said that we would have to try and get the RSD under control before they could tell for certain. I sit really slouched over and it's nightmare trying to sit upright. I've always slouched a lot but it's got a lot worse since I got RSD. I really hope that the PT can help you. Your PT's seem nice and as though they know what they are doing so hopefully they will come up with some ideas to help! Thinking about you!

Dew - Thank you for the link - I shall check it out! I hate the dizziness and really wish I could get it under control. It's especially worse as I never know when it's going to happen, I just go right dizzy and then seem to pass out after that. Thanks again!

Sandy - I was wondering whether the extra pain could be making things worse also as my pain as been bad the past few weeks ever since the arm flare. When I went to the inpatient PT program, they told me that a girl with RSD used to pass out when the pain got too much and it was 'normal' for her. I'll have to mention it to my dr and see what he says and see if I can get anything to control the pain. Thanks for replying!!

Lorretta - WOW, that sounds like such a scary experience when you collapsed!! SO sorry you had to go through that! I'm glad that it hasn't happened to you since and pray it never does!! Thank you so much for the info on RSD affecting the internal organs. I knew that it could do that much didn't know how bad it could be - nothing surprises me with RSD anymore really though!! It was really scary when I fainted and I seem to be going dizzy throughout the day also, especially when I go from sitting to standing etc.

Mainstream school has been a nightmare. All of my 'friends' have disappeared and could care less about me now. I tried going back not so long ago on a Friday and really hated it as I was just left on my own at break. My arm flared up after that also and my dr thinks that the stress didn't help so I have been told not to even try going back there anymore. I go to a school centre now which is really good. I have been going since September. Only about 10 children go which is nice as you get more one to one work and it is all in one room so you dont have to move hardly. The teachers are also understanding about my RSD and I have met some great friends there. I go on a Monday to Thursday at the moment but am hoping to try and go full time soon. It only lasts for 4 hours which is nice as I get very tired. I have also been accepted onto a course in Health and Social Care from September at college so that should be really good and I get lots of qualifications if I pass which will help towards getting a job in later life!!

Thanks again everyone for all of your input - I really appreciate it and will defintiely be sure to let you know what my doctor says and what we find out!

Take care everyone!