Quote:
Originally Posted by SandyRI
My twin sister is an RN with a master's from Univ of PA, and is married to a surgeon who was also educated at U of P. - They swear that RSD is always a misdiagnosis of something. In other words, they don't believe in it. And they tell me that a significant percentage of the medical profession doesn't believe in it either.
I have been tested for Lyme 4 times (including the Western blot test), Lupus, and RA. I've have my sed rate tested a number of times. I've had MRI's. I had my latest Lyme test done just last week (My PCP asked me to please wait a while before asking for another one, because my personal insurance co was going to start asking questions).
All evidence continues to point to RSD. Just like the rest of you.
I understand that there are a number of judges in the WC courts that refuse to believe in RSD as a diagnosis. And that medical liability lawsuits in some states can run into the same problem, unless they are heard in front of a jury.
So my answer is that there appears to be a huge "MYTH" regarding the "existence" of the syndrome, even among well educated medical professionals.
Sandy
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Social Security now recognizes RSD or CRPS as a real chronic pain disorder so let them chew on that.
"Fibromyalgia
Lupus
Chronic Fatigue Syndrome
Multiple Sclerosis
Ankylosing Spondylitis
Chronic Headaches
Reflex Sympathetic Dystrophy
Rheumatoid Arthritis
Traumatic Brain Injuries
PTSD
Mental Illness
Bipolar Disorder
Depression
Muscular Dystrophy
Huntington's Disease
Multiple Sclerosis
Hepatitis C
Diabetes
Congestive Heart Failure
Cancer
Lung Disease
Multiple Chemical Sensitivities
Complex Regional Pain Syndrome"
I've sat with two doctors who told my wife she's a nut because RSD does not spread, I was shocked. As time went by I became numb to the ignorance and when the third one said that it didn't spread I looked straight into his eyes with all certainty and told him it does and he should look it up. He took me very seriously and never questioned it again.