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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Hi xmas!
By the time I was dx'ed I was so weak that I couldn't even chew and swallow ice! I was started on Mest, but my neuro did not want to start the pred - he was worried I would get weaker - but after my crisis I was admitted to the ICU for 8 days, during which I received all of the above - IV IG in one arm, pred and mest every day. I started @ 10 mgs of pred, doubled the next day, until I was up to 80 mgs - talk about manic!
If you are still feeling weak you really need to tell your neuro - (s)he may want to add pred to your meds. The only problem is that you may initially become WEAKER when you start so you have to be really really careful!
Hope this helps a bit!
Big hugs!
ERin
Quote:
Originally Posted by xmas 25
just curious what the criteria is for mestinon,steroids,plasma,ivig are? how run down do you have to be to receive them? i had reaction to reg mestinon even though the relief was pretty good double visione gone!!!! now changed to timed release 1/2 bid if ok increase to 1/2 tid then check with dr.  |
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Erin
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