Nancy,

I hope you follow what Aussie is saying . . he is right on. I also have small fiber PN with some autonomic features. In my case, it is my heart. However, at this point, my cardiac functioning is subclinical, that is, I do not have any problems that warrant any attention.

And as with you, since there is no treatment for the PN itself, the focus has been and is on pain management. However, I remain full aware of my potential cardiac problem.

So I try and do as many healthy things as I can - this clearly makes sense not only to prevent any autonomic problems, but also to promote healing of my nerves. Even if they never heal, maintaining the best overall health I can is a cornerstone of trying to prevent further deterioration or slowing down the rate of nerve damage or helping me focus on something I can control to help my health and well-being or . . . well, I think you get the idea.

If you have not had a complete check of your autonomic functioning, you might want to think about doing so.

rfinney