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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Oh, I too hope I have no problems with the IVIG.
I was told, that ,what they try to do is, for the first time, give it over a 3 to 5 day period, and it can be like every other day, just to be careful. And then, every so many weeks, or even months for a refill...kind of thing.
I can handle that.
For me, the reason I'm starting IVIG is because all other meds are causing more kidney damage, and I am pretty weak.
Mestinon, really is a good bandaid for MG, but a true treatment is an Immunno suppressant. I never got any relief from double vision with Mestinon. Prednisone helped it.
I'm not sure what the answer is, as far as what meds are required in order to get which treatment.
This is the way I looked at it. I wanted to try the least of all the evils shall we say, and go from there. Just Mestinon would never work for me. For many reasons. One, it causes me terrible diarrhea, and then it never seemed strong enough for me.
Prednisone was the first med given to me, before I even left the hospital. I was one that felt stronger with in a week to two weeks. I was in love , but then, other medical problems popped up from it. So everything has it's problems. It's just important to find the right mix of meds for your body, and your weakness.
Hope this helps some
Love Lizzie
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