Hi G ~

Just wanted to say a quick hi and welcome! We have a few people with TOS problems also, you're definitely in the right place, but sorry to hear about this recent diagnosis. It's quite common for doctors to disagree on that with RSD but since none of these "neuropathic" problems seem to have a definitive dx procedure you're best assuming that it probably is what the greater number agree on.

In the last analysis you need to control the pain, so going with the flow can't hurt and might help...

We all seem to take a variety of different meds, not only because we all react differently to the disease, but each stage requires different kinds of relief. And many of us have other medical complications..

My main RSD med is neurontin, I seem to be the only person it suits, but at a low dosage it provides enough relief to push the pain into the background while still allowing me to function - I can't function at all on higher doses of it, though.

Anyway, just wanted to say welcome!
all the best