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Old 05-22-2009, 03:11 PM
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Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
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welcome!

and yes. I have done it. I was told I was young, healthy and strong, and needed to find better things to worry about. I was told I had migraines, and given MRIs that "showed nothing" and I learned to just get on with my life. Had flares here and there, but nothing drastic. Fast forward to 06 and my MRI shows a brain tumor. Investigation showed it was there the whole time I was "whining" and "putting on a show" but they never thought to bring it up. It was also clear I had MS.

The thing with MS is many of us have REMISSION which means most of our sx go into hiding, and we get on with our normal lives. The only thing we do differently with a dx is take a shot every day or every other that has about a 30% chance of calming the disease. Your best defense against this disease (with or without a dx) is diet, exercise, and a good attitude.

Many have been to an MS center, and its been discovered that they had enough evidence even with a clean MRI to be diagnosed (dx) or have shown up with a dx in hand only to be told it was Lyme, or B12 or Sjogren. There are more than 100 diseases that can mimic MS. Its a tough thing to rule in, or rule out.

It is very frustrating to be told to go home and stop whining (trust me I know) but after a certain point the MD in front of you runs out of answers. It may be time to see an MS specialist. Or Clinic that specializes in it. Make sure you have the normal suspects ruled out. Low B12, Lyme, Lupus, Sjogrens, and so on. Also many find that going on a clean or non processed food diet helps them feel better.

You are welcome to hang out, with or without dx.
__________________
RRMS 3/26/07
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Betaseron 5/18/07
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Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
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"Thanks for this!" says:
dmplaura (05-25-2009)