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Old 05-22-2009, 03:42 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Hi xmas!

Hello xmas! Yep - we MG'ers are a special, special group of people! The eye thing totally MG related . . .I had problems keeping mine open before I was dx'ed! Totally stunk! I have not that problem since I started on the pred......

Hang in there, sweetie! The 1st year IS ALWAYS the HARDEST! They are trying to adjust your meds, make sure you don't have a crisis, etc, and tons of appts., but it is all worth it!

It does sound like you need to "up" your meds - mestinon doesn't always do it - especially if you are really weak!

Can't wait to hear from you!
Erin







Quote:
Originally Posted by xmas 25 View Post
just diagnosed 2 months ago however my only eye problem is doulbe vision but today as some other days when i tried to open eyes after laying down this afternoon-i couldn't. it seemed like 3-4 mins but probably only 1 min. is it just something normal people have or only us special folks? never know what is normal or not due to fact i have another longstanding illness with med issues.i always blamed tiredness on the other and its meds. even leaning on grocery cart which i don't do as often since mestinon. this is so confusing-i wish i could just take some meds,adjust my attitude to mg and get on with my life!!! i hate mg!! thanks i just had to say that right now have a great w/e!
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