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Magnate
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Magnate
Join Date: May 2007
Location: Heah!
Posts: 2,921
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Yikes!
That would have gotten the attention of everyone involved in my infusion center, along with my neuro and ME!
I'm glad to hear that everything came out well, and that she is able to continue. I hope it continues to go well and that you both will keep us updated on any further adverse reactions so we can watch out for them ourselves.
It's good for all of us to remember that you can have an adverse reaction at any time, even when you have been on a drug for a long time. I still sit quietly and assess my body and it's reaction at each infusion and I don't think infusions will ever become a "matter of fact" thing with me. It took me too long to be where I am and I am always afraid that something will happen to change the excellent results I have had.
Tell LL we're pulling for her!!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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