Luna Marie
You have every right to feel angry with the care you received in the hospital. Like Porkette, I'm 38 y.o. I've had E since early childhood, but diagnosis & treatment didn't begin until my complex partial secondarily-generalized at age 26. Many medications were tried and I never gained control of my seizures. At age 35, I finally saw an epileptologist. My neuro was at a loss and had the good heart and admitted that my case was out of his league.
The epileptologist has been wonderful! He tried a few different medications, dosages, and quickly decided to begin testing (to check surgical candidacy). In March 2006, I had my left temporal lobe resected in hopes to finally gain control. I've hit some major bumps in the road since, and my epileptologist has helped me many times. When he couldn't help, he sent me to those who could help. Epilepsy Treatment Centers are worth the money and travel.
Mayo Clinic in Rochester, Mn. is where I go. Very best wishes and hugs to you!
Take care,
Shez :heart: