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Elder
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Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
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Elder
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
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I am unable to have a SCS as a doctor tried an external nerve stimulator and it made my RSD worse... EXTREMELY WORSE!!! This was supposed to block pain signals to my brain as an SCS does but it didn't work.... My pain went from a 3 to a 10+ in less than 45 minutes with me wanting to cut my leg off. It also caused immediate spread from my foot up my leg to my torso in this short amount of time. After this I was and am still afraid to find out what the SCS might do to me... and the doctors agree.. this is not worth the risk.
As far as a pain pump... doctors have told me that this is not an option at this time as the medicines that are put into these are narcotic based meds.
I checked TALWIN NX... unfortunately it too is a narcotic analgesic... thank you for giving me the name of this medicine as I had never heard of it...
I havn't given up and I keep looking for new medicines that are not narcotic or opiod pain killers. I keep looking for anything to ease this pain... I have re-written what a 10 pain level means many MANY times.
I do take Lyrica, Cymbalta, Baclofen, Seroquel, Frova, and Xanax.... but these really do very little to ease the RSD pain.
I sincerely appreciate all of you!!! You are all wonderful!!!!
 
Abbie
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My avatar pic is my beautiful niece Ashley!
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Rest in Peace 3/8/90 ~~ 4/2/12
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