Hello everyone,

Where to start...Hmm...I'm 26...I started having odd symptoms when I was 21...I started noticing that my hands felt sorta weak whenever I was tired and I would get really bad joint pain first in my hands/wrists, then in every other joint in my body....I ended up seeing a rheumy who ran tests and saw that I have markers for Lupus and Hashimotos, but I was not diagnosed as I didn't fit the mold for either disorder...So I lived on with the pain/weakness for years...

Last year, everything got much worse...It started with a twitch in my lower eyelid, very mild facial weakness when tired...One morning, I woke up and I couldn't move my eyes from side-to-side for a few secs...It was really disturbing! Also, my eyes ached all the time...During all of these 'episodes,' I would see the doc., but he would emphasise that I was just being anxious...I also felt like I couldn't breathe sometimes...I actually DID have a chest xray done, which showed stenosis of the spine (don't forget, I'm 26, so this is really weird.), but that was it...So anyway...life went on...Then one day, I was talking to my friend on the phone, and my voice went all nasal...That was freaky and embarassing...It lasted the rest of the conversation...I hadn't talked to this person in years, so she must have thought I smoking helium balloons or something lol...Anyway, then my voice started to slur during stressful situations...That was enough...I finally saw a neuro who said that I have bulbar MG ( don't really have any double vision, ptosis)...Everything got worse...I had to quit my job, I couldn't eat at all...couldn't talk...I'm having plasma exchanges and IViG next week...Also found out that I have a thymoma, so I guess thymectomy soon too....

Anyway, sorry about the long schpeal...Just wanted to share my story...I'm very concerned with the thymoma aspect....It freaks me out that I have cancer...It makes me wonder what the rest of my life is going to be like...