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Old 05-26-2009, 01:29 PM
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Dear Gymjunkie,

You sound angry. I live in the US and have had a terrible time getting treatment (even though it is available), I can't imagine living in a country where, even if you are willing to try, you can't get treatment because it's just NOT there. Mslday has posted in the past in detail of her experiences in Germany. She has also posted more recently (I think) about subcutaneous Lidocaine, and, I am fairly certain, was very generous about 6 months ago in providing me with its protocols, (with which I tried in vain to get a few U.S. doctors to provide me, without success).

Ali from the UK also seems to be limited in her treatment options. Can you get to another country for treatment? If you think that you could never afford it, consider this:

A co-worker of mine has a child that has been sick for 6 years with RSD, and has been to Germany for the ketamine coma. When they needed money for his treatments many fundraisers were held at local venues to help his family. It worked. He and his wife have been incredibly supportive of me, and even suggested that I do the same if I continue to have problems with WC, something I never would have considered.

Good luck and take care, Sandy
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"Thanks for this!" says:
loretta (05-27-2009), Mslday (05-26-2009)