Hey. Is the sleep doctor a neurologist, or rather, an MG specialist?!!! No, I didn't think so. You need to probably consult with a pulmonologist and/or the MG expert when you see him. Some pulmonologists are sleep experts too. But I wouldn't wait to get help from Bi-Pap until you see the guy in August. Hypoxemia is dangerous! You need to have the Bi-Pap.

What Bi-Pap does is kind of let your chest wall muscles take a break while sleeping, so that is actually a good thing. They are starting to use Bi-Pap in MG crisis situations if it is not too bad in order to keep from intubating patients. During a crisis it's on a spectrum from oxygen to Bi-Pap (with or without oxygen) to intubation.

I'm sorry that doctor poo-pooed your concerns instead of explaining that to you. He just made you even more concerned.

Everyone's O2 stats go lower on planes. Mine do what yours do. If I sit in my chair, they may only go into the upper 80's. If I dare go to the bathroom, the dip into the 70's. Not good. How that effects you depends upon what other conditions you have (like heart disease/coronary artery disease). Keep hydrated and try not to get up! And talk to your primary doctor or a pulmonologist about it.

Your O2 stats may even be dropping if you walk too far if you are that bad off. Do you have an oximeter? Nonin is the most expensive but best brand out there.

Just do what the doc says, then your MG specialist can re-evaluate how you are doing later this summer. You need help!!!! A lack of oxygen adversely effects the brain, kidneys and heart (the most).

Hang in there!

Annie