Hi Susie, I went to the Mayo Clinic when I was first diagnosed. I had a rheumatologist who thought it was MS but wasn't sure since it could be other things too -- I had a low grade fever and strange bloodwork (low positive for antiphospholipid antibody syndrome and recent Epstein Barr). Anyhow, the reason I got into the Mayo Clinic is because my rheumatologist directly called the Mayo for me. That put me right into an appointment with the Neurology Dept. of the Mayo Clinic. I believe if you try to go on your own they will start you out in general medicine. You might also consider going to the Mayo in Arizona or Florida. They are also great too and I bet the wait is not as long as the Mayo in MN. I had to wait 3 months and got an appt. on Dec. 26, kind of an off day. Good luck. Keep us posted. I'm sorry to hear of your troubles.
Natalie